Latest results on PET Scan and where we go from here.

Good Morning family and friends.  I would like to apologize for not getting this out sooner and in the right place.  If I am diligent, everything should end up in one area (here) to simplify things for all of us.

I was taken in right away to see the oncologist and he did the standard checking me over for edema and lung sounds.  The doctor gave me a bare rundown on what was discovered and stated that he wanted to discuss the results with a college at the Rochester Mayo Clinic that specializes in lung cancer…which took a lot longer than I had hoped.  Thank God my family is patient and waited by their respective phones for the go ahead to call for all of the details.  In an attempt to save time and energy here I am going to pull a quote from the doctors notes instead of trying to paraphrase it

“I did discuss at length with one of the physicians in Rochester in the lung division potential treatments for Kristen. It was decided to go ahead with Taxotere and have her sent over to Rochester. Given her age and the course of this lung tumor, there is a good possibility that she has a driver mutation, and I think the efforts will be to see if we can identify a mutation for a unique treatment for this young woman. Obviously on her PET scan that was just done, she has progressive disease in the liver, and so the carboplatin and Alimta was not very effective, and we need to press forward to see if we can find effective alternate treatment. I did discuss this at considerable length with Kristen who had her sister present by telephone. She agrees to go ahead as outlined above.” ~ Oncologist Mankato

It looks like there is a strange plan afoot for scheduling the Rochester appointment.  They want to see me after the first 2 Chemo treatments are done but before the 3rd one starts.  This involves math 🙁  So I need to call them back and schedule the appointment when I can figure out what what days fall into their criteria.

We did start the new Chemo on Wednesday and I am feeling pretty darn loopy and understand what they mean by Chemo fog. Thinking has become an olympic sport and I think Webster’s has redefined what exhaustion means.  I received a piece of good news and met a man that manages wheelchairs over at the American Legion, and he was able to drive me over a chair that Is nice and light weight and can use around the house to ease up on the back pain and which seems to be helping.

On that note, a nap is calling me from down under and it’s time..Everyone have a wonderful weekend and much Love!!




  1. monica says

    Hey, didn’t we just have a math discussion last week? I am sure the staff will be more than happy to help. Or you can let me figure it out. I want to call but, I don’t want to disturb you either. If you have the strength pick up the phone. Otherwise, know that you are always close to my heart. Hoping that the days are getting better. So thankful for another blessing of the wheelchair. Even if the news brings another shot of reality it also makes me smile because you can get around by yourself.
    Love you lots,

  2. says

    I like the valuable information you provide in your articles.
    I’ll bookmark your blog and check again here frequently.
    I am quite certain I’ll learn many new stuff right here!

    Good luck for the next!

  3. says

    Hi there, just became aware of your blog through Google, and found that it
    is really informative. I am going to watch out
    for brussels. I’ll appreciate if you continue this
    in future. Many people will be benefited from your writing.

  4. says

    I’m not sure exactly why but this blog is loading incredibly
    slow for me. Is anyone else having this problem or is it a problem on my end?

    I’ll check back later and see if the problem still exists.

  5. says

    Hi! I’m at work browsing your blog from my new
    iphone 4! Just wanted to say I love reading through
    your blog and look forward to all your posts! Carry on the excellent work!